Applicants must be Australian citizens or residents who are eligible to receive Medicare benefits.

The types of EB set out below are eligible under the scheme.

Skin biopsy and/or genetic testing is required to support your application as follows:

• For newborns    Tests and results must be submitted within 3 months of approval.
• For all others    Tests and results must be submitted within 6 months of approval.

To maintain eligibility, Approved Applicants must attend regular reviews as set out on the Application Form.

A more in-depth review of the eligibility critiria is provided in the National Epidermolysis Bullosa Eligibility Guidelines.

EB Simplex

EB Subtype	Duration of Eligibility
EB simplex, generalised type;	Newborns with severe forms up to 24 months of age
EB simplex, localised type	Newborns with severe forms up to 24 months of age
EB simplex with migratory circinate erythema	Newborns with severe forms up to 24 months of age
EB simplex with mottled pigmentation; EBS-MP	Newborns with severe forms up to 24 months of age
EB simplex, generalised - Dowling-Meara type	Eligible up to 18 years of age
EB simplex, autosomal recessive	Eligible up to 18 years of age
EB simplex with muscular dystrophy	Eligible up to 18 years of age
EB- Skin fragility – ectodermal dysplasia syndrome	Eligible up to 18 years of age
Lethal acantholytic EB	Eligible up to 18 years of age

Junctional EB

EB Subtype	Duration of Eligibility
JEB – Herlitz	Eligible (all ages)
JEB- non-Herlitz	Eligible (all ages)
JEB-other	Eligible (all ages)
JEB- PA	Eligible (all ages)
JEB- LOC type (laryngo-onycho-cutaneous type)	Eligible (all ages)
JEB inversa	Eligible (all ages)
JEB late onset	Eligible (all ages)

Dystrophic EB

 

EB Subtype	Duration of Eligibility
Dominant dystrophic EB Localised, generalised	Eligible (all ages)
Recessive dystrophic EB localised; generalized	Eligible (all ages)
RDEB- generalised severe	Eligible (all ages)
DEB pruriginosa	Eligible (all ages)
DEB acral	Eligible (all ages)
DEB nail only	Eligible (all ages)
DEB- BDN	Eligible (all ages)

Kindler EB

EB Subtype	Duration of Eligibility
Kindler syndrome	Eligible (all ages)