National Neonatal EB Baby Boxes

The National Neonatal Epidermolysis Bullosa (EB) boxes are an initiative between Mölnlycke Health Care, Independence Australia and DEBRA Australia (Dystrophic Epidermolysis Bullosa Research Association). The aim of this initiative is to provide best practice information, education, and resources to those clinicians who are looking after a newborn baby with suspected EB. Early information, education and early use of best practice dressings, is imperative for better health outcomes for the baby. Supply of these EB boxes ensures appropriate care is provided therefore reducing the trauma that may be experienced from inappropriate dressings use. They also provide a consistent approach to newborn management of EB cases around Australia.

Transfer of a baby with moderate or severe EB to a centre of expertise will often be the choice of the neonatologist or paediatrician. However, immediate transfer is not always possible, and movement or transfer can cause further trauma. The information and materials in this box will help to provide safe, best practice care in the interim.