Who is Eligible?
Applicants must be clinically diagnosed with EB and be an Australian citizen or resident who is eligible to receive Medicare benefits.
People with all types of EB are eligible under the scheme.
Proof of diagnosis by the way of one of the following is required to support your application:
- skin biopsy testing
- genetic testing
- clinical diagnosis by an Approved Specialist Health Care Professional or a multidisciplinary EB clinic.
If the application is for a newborn suspected of having EB, provisional access to the Scheme may be given for six (6) months. A confirmatory diagnosis must be submitted three (3) months following the approval of the original application for the Applicant to continue on the Scheme.
A more in-depth review of the eligibility criteria is provided in the National Epidermolysis Bullosa Eligibility Guidelines.
What if I’m not Eligible?
People who are not eligible for the scheme are welcome to purchase dressings on the approved list and other specialised dressings and products stocked by Independence Australia at their own cost.
You can place orders through Independence Australia by the following methods: