Website links

We welcome your input. Please let us know of any additional sites you believe should be listed via our Contact Us form.

DEBRA Australia
The National Dystrophic Epidermolysis Bullosa Research Association of Australia (DEBRA) is a non-profit organisation that investigates and implements ways to help people with EB in their daily lives. DEBRA also helps educate the general public and healthcare professionals about EB and raises funds for vital research into EB.

Australasian College of Dermatologists
The Australasian College of Dermatologists provides basic information about various skin diseases and problems. You will also find contact details of individual dermatologists in your state and city.

Australiasian Wound & Tissue Repair Society  
The Australasian Wound & Tissue Repair Society (AWTRS) is a non-profit organisation founded in 2007 promoting knowledge and interchange between scientists, healthcare professionals, industry and other individuals who have an interest in wound healing and tissue repair.

Australian Blistering Diseases Foundation
The Australian Blistering Diseases Foundation (ABDF) is a non-profit organisation that fundraises for research into life-threatening blistering diseases, supporting people with EB and their families by providing information and a network of supporters with similar conditions.

Australian Government Department of Health
The Australian Government Department of Health promotes better health and active ageing for all Australians. The National EB Dressing Scheme is an initiative of the Australian Government.

Australian Wound Management Association
The Australian Wound Management Association (AWMA) is a multidisciplinary, non-profit association consisting of people who are committed to developing and improving wound management for all individuals through education, research, communication, and networks.

Dietician’s Association of Australia
The National Association of Dieticians in Australia.

Royal Children’s Hospital Melbourne
The Royal Children’s Hospital Melbourne offers a Fact Sheet on EB in their ‘Kids Health Information for Parents’ section.

St George Hospital Kogarah, Department of Dermatology
For adults with EB. Contact 02 9598 5800 for information about EB Clinics.

Sydney Children’s Hospital Randwick
The Sydney Children’s Hospital Randwick provides diagnostic evaluation and a large range of medical services for children with EB.

International Resources

DEBRA International

DEBRA – UK

DEBRA – USA

DEBRA – New Zealand

For a listing of other international DEBRA websites, go to www.debra.org.au.